TBI Journey Inc.

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Helpful Links

This page is full of HELPFUL LINKS to organizations and agencies all over the world that can help you with understanding, coping with and accepting a brain injury. All of the links provided are active. Just point at it with your mouse and click on it, the webpage or e-mail link will open in a new page.

Dr. Sullivan has developed a page on Facebook to provide information about resources for those dealing with the consequences of brain injury, their family and supporters as well as those interested in general health information.  It can be accessed at: https://www.facebook.com/TBIjourney

Brain Injury Organizations and Agencies

Brain Injury Association Inc.
1608 Spring Hill Road, Suite 110
Vienna, VA 22182
Phone: 703-761-0750
Fax: 703-761-0755
Family hotline: (800) 444-6443
Website:
http://www.biausa.org

Brain Trauma Foundation
523 East 72nd Street 8th Floor
New York, NY 10021
Tel: 212-772-0608
Fax: 212-772-0357
Website:
http://www.braintrauma.org

Dana Foundation/Dana Alliance for Brain Initiatives
745 Fifth Avenue, Suite 900
New York, NY 10151
Phone: 212/223-4040
e-mail:
danainfo@dana.org
Website:
www.dana.org

Head Injury Hotline
212 Pioneer Building
Seattle, WA 98104-2221
Phone: 206/621-8558 (V)
Email:
brain@headinjury.com

The National Resource Center For Traumatic Brain Injury
Department of Physical Medicine and Rehabilitation
Medical College of Virginia
Virginia Commonwealth University
P.O. Box 980542
Richmond, VA 23298-0542
Phone: 804/828-9055 (V)
Fax: 804/828-2378
e-mail:
mbking@hsc.vcu.edu

National Stroke Association
9707 East Easter Lane Suite B
Centennial, CO 80112-3747
E-Mail:
info@stroke.org
Tel: 303-649-9299 or 800-STROKES (787-6537)
Fax: 303-649-1328
Website:
http://www.stroke.org

North American Brain Injury Society
 
P.O. Box 1804 
Alexandria, VA 22313
Telephone: 703-960-6500 
Website: 
www.nabis.org


International Brain Injury Associations

International Brain Injury Association: www.internationalbrain.org

The Brain Injury Association in U.K.: www.headway.org.uk

Brain Injury Association of Canada:
www.biac-aclc.ca

Brain Injury Australia: www.bia.net.au

Brain Injury Association of New Zealand: www.brain-injury.org.nz

Irish National Association for Acquired Brain Injury:
www.headwayireland.ie


Brain Injury Information Resources

American Academy of Neurology Website: www.aan.com

Brain Injury Information Network Website: www.tbinet.org
Extensive resource list:
http://www.tbinet.org/resources.htm#TBIOrg

Brain Injury.com Website:
www.braininjury.com

Brain Injury Resource Center Website: www.headinjury.com   

Brainline.org Preventing treating and living with Tramatic Brain Injury
Website: http://www.brainline.org/

Center for Disease Control (CDC)
National Center for Injury Prevention and Control Website: www.cdc.gov/TraumaticBrainInjury/index.html

Centre for Neuro Skills-TBI Resource Guide Website:www.neuroskills.com

Craig Hospital Brain Injury Education Information
Website:
www.craighospital.org/TBI/healthAndWellness.asp

Defense and Veterans Brain Injury Center
1-800-870-9244 (DSN) 662-6345
e-mail:
info@dvbic.org
Website:
www.dvbic.org  

Head Injury Prevention In Youth Sports: An Online Guide    

Website: http://www.publichealthdegree.com/resources/head-injury-prevention-in-youth-sports-an-online-guide/

National Institute of Neurological Disorders and Stroke (NINDS) Traumatic Brain Injury Page Website: www.ninds.nih.gov/disorders/tbi/tbi.htm

National Resource Center for Traumatic Brain Injury
Website:
www.neuro.pmr.vcu.edu

Neurosurgerytoday.org Website: www.neurosurgerytoday.org

The Perspectives Network
E-Mail Address:
TPN@tbi.org
Website: http://www.tbi.org

The Rehabilitation Research Center for TBI & SCI Website: www.tbi-sci.org

Tramatic Brain Injury Resource Directory TBIRD Website: www.tbi-sci/tbird

Traumatic Brain Injury Survival Guide Website: www.tbiguide.com


Accessible Travel

Moss Rehab Resource Net Website: www.mossresourcenet.org/travel.htm


Advocacy Groups

Mothers Against Drunk Driving (MADD)
24 Helpline: 1-877-MADD-HELP 1-877-623-3435
Website:
www.madd.org

National Domestic Violence Hotline
Phone: 1-800-799-SAFE(7233) TTY:1-800-787-3224
Website:
www.ndvh.org


Assistive Technology

Ability Hub Website: www.abilityhub.com

ABLEDATA Website: http://www.abledata.com/

Brain Tumor Resources

American Brain Tumor Association Website: http://www.abta.org

Brain Tumor Society Website: http://www.tbts.org

National Brain Tumor Foundation
Call for support 1.800.934.CURE
Website:
http://www.braintumor.org


Caregiver Support

Family Caregiver Alliance (FCA)
180 Montgomery Street, Suite 1100
San Francisco, CA 94104
Phone: 415/434-3388 (V); 800/445-8106
Fax: 415/434-3508
Email:
info@caregiver.org
Website: www.caregiver.org

The TBI Help Desk for Caregivers Website: http://www.tbihelp.org


Community Integration

Research and Training Center (RRTC) Website: www.tbicommunity.org


Disability-Information, Advocacy, Rights

ADA Home Page (US Dept of Justice)
Website:
www.usdoj.gov/crt/ada/adahom1.htm

American Association of People with Disabilities Website: www.AAPD.com

ADA Technical Assistance Program and Regional Disability and Business Technical Assistance Centers Phone: 1-800-949-4232 Website: www.adata.org

American Association of People with Disabilities
Website:
http://www.aapd-dc.org

Americans with Disabilities Act ADA Home Page: www.ada.gov

Disabilityinfo.gov Website: www.disabilityinfo.govHYPERLINK "http://www.disabilityinfo.gov/digov-public/public/DisplayPage.do?parentFolderId=500"

Internet Resources for Special Children Website: http://www.irsc.org

National Council on Disability Website: www.ncd.gov

National Disability Rights Network Website: www.ndrn.org

National Dissemination Center for Children with Disabilities
Website:
www.nichcy.org

World Association of Persons with Disabilities Website: http://www.wapd.org

Domestic Violence

Domestic Violence: How to Get Help when You Are Scared of the Consequences

https://www.homesecuritylist.com/domestic-violence/


Education

Educating Educators About ABI Website: http://www.abieducation.com

Lash and Associates Publishing/Training
Website: http://www.lapublishing.com/


General Health Information

American Speech-Language, Hearing Association
10801 Rockville Pike Rockville, MD 20852
Telephone: (800) 498-2071 or (301) 897-8682 TTY: (30l) 897-8682
Website:
http://www.asha.org

Centers for Disease Control Website: http://www.cdc.gov

Healthfinder Website: http://www.healthfinder.gov

Medscape Website: www.medscape.com

National Institute on Deafness and Other Communication Disorders
Website: http://www.nidcd.nih.gov/health/voice/tbrain.asp

National Institutes of Health Website: http://health.nih.gov/

Medline Plus  http://www.nlm.nih.gov/medlineplus/

National Institute of Neurological Disorders and Stroke
Website:
www.ninds.nih.gov

The National Library of Medicine MEDLINE
Website:
www.ncbi.nih.gov/entrez/query.fcgi

Optometrists Network Website: www.vision3d.com

SafeUSA Website: http://www.cdc.gov/safeusa

The Whole Brain Atlas Website: http://www.med.harvard.edu/AANLIB/home.html


Independent Living

Independent Living Centers
Websites:
www.virtualcil.net/cils or www.ilusa.com/links/ilcenters

National Council on Independent Living Website: www.ncil.org


Legal Resources

Brain Injury Law Group Website: www.tbilaw.com

Neurolaw Website: www.neurolaw.com


Mental Health

Mental Health Net Website: http://www.mhnet.org/

National Alliance for the Mentally Ill (NAMI) Website: http://www.nami.org

National Institute of Mental Health Website: http://www.nimh.nih.gov


Health Fraud

The National Council Against Health Fraud Website: www.ncahf.org

Quackwatch, Inc. Website: www.quackwatch.com


Rehabilitation

The National Rehabilitation Information Center Website: www.naric.com

The Rehabilitation Research Center for TBI and Spinal Cord Injury
Website:
www.tbi-sci.org


TBI Chat Groups

TBI Home Website: www.tbihome.org

Brain Injury Chat Website: http://www.braininjurychat.org


Brain Injury Books

Brainlash: Maximize Your Recovery from Mild Brain Injury by Gail L. Denton Website: www.brainlash.com

Children with Traumatic Brain Injury: A Parent’s Guide. Edited by Lisa Schoenbrodt, Ed. D.

Coping with Mild Traumatic Brain Injury: A Guide to Living with Problems Associated with Brain Trauma by Diane Stoler Website: www.drdiane.com

Head Injury: Information and Answers to Commonly Asked Questions: A Family’s Guide to Coping by Christopher D. Sturm, Thomas R. Forget, Janet L. Sturm

I’ll Carry the Fork by Kara Swenson

Living with Brain Injury: A Guide for Families, Richard Senelick, MD and Karla Dougherty.

Over My Head: A Doctor’s Own Story of Head Injury from the Inside Looking Out by Claudia L. Osborn Website: www.claudiaosborn.com

Traumatic Head Injury: Cause, Consequence and Challenge. Dennis P. Swiercinsky, Terrie L. Price and Lief Erick Leaf, 1993


Local and Store Resources

State Division of Vocational Rehabilitation - State agency which provides vocational rehabilitation services individuals with disabilities. Services can inc1ude: counseling, advocacy, job training, job placements, and a variety of additional support services including continuing, adult and post-secondary education. For the Office of Vocational Rehabilitation Services in your State, consult a phone directory or search online.

Rehabilitation agencies and hospitals: Contact local rehabilitation center departments for outpatient support programs

Local park and recreation agencies may have programs for special groups, including those with disabilities or more specifically, those with brain injuries.

Safety

American Medical ID Website: http://americanmedical-id.com

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